About Me

Hey there!

My name is Allyson and I was born with lymphedema in my left leg. After many years of staying in the dark about my lymphedema I’ve recently decided to be more open about my condition – which has been SO liberating. Since openly wearing my compression garments in public I’ve been pleasantly surprised by the amount of people that want to know more about what it’s like to live with lymphedema. With that in mind, I’ve decided to start this blog so that I can spread more awareness. My hope is that one day lymphedema will be better understood by the medical community and the public. I also want to be a voice for those who feel alone or afraid to be themselves. Having lymphedema has taught be to embrace my imperfections by seeing them as something that makes me unique – which is a lesson I think we can all learn.

My first day on campus openly wearing my compression garments.

My first day on campus openly wearing my compression garments.

21 thoughts on “About Me

  1. Thank you for sharing your story. I am a cancer survivor. I had several lymph nodes removed as part of my treatment (the cancer had metastasized to my lymph nodes). I am cancer-free but I do have lymphedema now. It is a real bummer- especially in the Texas heat – but I am alive and enjoying a beautiful life. I get to be a mom of 3 children, a wife, and a nurse! Keep writing your experiences. It will help you and help us, too. XOX

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    • I’ve just begun treatment for my Lymphdema. I’ve tried to get this treatment for the last year because I knew I had it – too many Dr’s don’t recognize it. I’ve started the bandaging 2 weeks ago and already seeing results. I have secondary lymph caused from venous insufficiency. Thanks for your words of encouragement!

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  2. Hey Allyson! I’m Leora, I’m 17 and I was born with lymphedema in my right leg and foot. I’ve had my share of issues, including developing lymphedema in my left arm and hand last year after a painful and long infection and dealing with chronic pain. Even though I’ve worn a garment everyday since I was 4 years old, it was hard for me to transition to a full length garment and I still sometimes resent my condition. It’s really great seeing other people around my age spreading awareness about congenital lymphedema and not letting lymphedema get the best of us!

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    • Hi Leora, I’m sorry about my delayed response! I resented my condition for a long time and being able to see other people thriving with their lymphedema (especially young people!!) always inspired me. Let me know if you would like to connect sometime! It’s everyday that I talk to someone who had primary lymphedema too.

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  3. Thank you for sharing this. My name is Sandra, I’m 47 yrs old and I have primary Lymphedema of both of my legs but because of a bad cellulitis infection about 15 years ago, my left is a little bigger than my right. It isn’t “nice” to hear about other people having this, but it is comforting to know that I’m not alone – finally. No one really “gets it”, how the humidity and heat can wipe you out but I have to say that I was ecstatic to see your beautiful young person – in a dress Allyson, as I have been too shy to wear one for years. Maybe I’ll give it a try again. I love the enthusiasm your picture evoked. What a great idea with all these web sites popping up. For many years there was not a lot of talk or help or anything out there. “When I was your age”, there was a paragraph on Lymphedema praecox or primary lymphedema and that was it. You are already making a difference, how great! Keep posting, how fun!

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    • Hi Sandy, this made me smile & this is exactly why I decided to make a blog. When most people have never even heard of lymphedema it can be so scary to go out in a dress but it’s definitely worth it! I encourage you to take small steps to be more open about your lymphedema. At the end of the day your confidence will be what people remember. Thanks so much for your comment and I look forward to keeping in touch!

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  4. Hi Allyson,
    I will share your blog with my daughter. It is wonderful that there seems to be more and more young people sharing their stories. It great to know there are others that understand the special challenges being young and different can bring. My daughter is 18 and was diagnosed with lymphedema at 15 . She, like you has decided not to hide her lymphedema and plays sport, loves the beach etc and is presently holidaying in Europe.
    I am interested to know how you got your leg down in size when it had been so large. Was it purely massage and wrapping?
    Jenny

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    • Hi Jenny, I’m glad to hear your daughter does not let it stop her from staying active. As a got older I started elevating my leg more and I did wrapping and massage for many weeks which helped as well. My leg still isn’t where I would like it to be but since I am in school right now I only have so much time for treatment. Let me know if you have any other questions!
      – Allyson

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  5. Hi Allyson,
    I just stumbled upon your blog. Reading it literally brought tears, not of sympathy, but of recognition. I’ve been ‘blessed’ with primary for nearly 50 years, and have, over that time, experienced all of the feelings and ‘issues’ you’ve shared – and am just recently approaching some level of self acceptance and love that I’ve allowed my condition to keep myself from. Thank you for your courage to come out in the open and share your life with lymphedema with others like yourself. You’re such an inspiration.

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